
My hEDS Story
Welcome!
I’m April Halleron MD and I specialize in caring for people with Hypermobile Ehlers-Danlos Syndrome (hEDS).
Like many of my patients, my journey began with years of unexplained symptoms. As a child I had bad “growing pains,” was always picked last in gym class, and struggled to keep up. I was a clumsy teen. I was tired. Yet doctor after doctor told me I was normal. My family had similar issues, so I assumed this was just how life was going to be for us.
At times, I wondered if it was all in my head. Was I making up my symptoms? Maybe I was mentally ill. Then a psychiatrist told me that wasn’t the case—and everything began to shift.
Despite excelling in medical school, I had never been taught about Ehlers-Danlos Syndrome. So I didn’t even recognize it in myself—until I stumbled across a social media post describing someone else’s story. Their symptoms mirrored mine. I dove into medical research and couldn’t stop.
I was formally diagnosed at 38 and I haven't stopped learning since. I became a strong advocate for myself—and even taught other physicians about the condition.
My hEDS diagnosis led to other diagnoses, including Gastroparesis, Dysautonomia, Mast Cell Activation Syndrome, and Craniocervical Instability. Each one brought me clarity—and more options for healing.
One of my worst symptoms was constant nausea, which turned out to be caused by several overlapping conditions. New treatments brought relief.
Bit by bit, I got my life back.
The key is not to give up. It’s hard to be hopeful when you feel so bad. Believe me—I understand.
Today, I’m stable. Though I still have flares, I now know why they happen and how to treat them. More importantly, I know how to care for myself and prevent most flares.
In 2024, when my employer refused to accommodate my health needs, I made the painful but powerful decision to leave family medicine—the job I loved—to protect my life.
But I couldn’t walk away from the HEDS community.
So I created the ideal clinic I’d always dreamed of—for Ehlers-Danlos patients. Here you will never be rushed, dismissed, or disbelieved. And you won’t have to travel out of state to get the care you deserve. I’ve built a space right here in Kentucky for people with hEDS to feel seen, heard, and supported.
I know what it’s like to feel lost and alone. I’ve been there. You don’t have to walk this journey by yourself.
You can feel better. You can reclaim meaning and joy.
And we’ll do it—together.
I’m so glad you’re here. I can’t wait to meet you.
April Halleron, M.D.
(Family Medicine doctor and graduate of the Ehlers-Danlos Society ECHO program)